Research for SMA receives very little federal funding. The following organizations provide funding for research, medical needs, and quality of life items for children with SMA and other neuromuscular disorders. .
Muscular Dystrophy Association
The following charity
is a local children’s charity in the Lowcountry of South Carolina that assists
families with quality of life items, therapies, and other expenses associated
with having children with diseases and birth defects.
All of these organizations have been integral in helping our family cope with this devastating illness and with their support both emotionally and financially we are able to provide Max with the best life experience possible.
Click here to learn more about current legislative pursuits for SMA.
